Privacy Policy

Last Updated/Effective Date: March 21,2023

Polycystic Kidney Disease Outreach, Ltd (“pkDO”, “we,” “us,” or “our”) respects your privacy. This Privacy Notice describes the processing of Personal Information (defined below) that is provided, collected, or shared on the sites, applications, social media pages, or other platforms that link to this Privacy Notice (collectively, the “Site”), or that is otherwise provided to, or collected by, us in connection with the services we offer (our “Services”). It also describes your choices about the collection, disclosure, and use of your Personal Information.

We may modify this Privacy Notice at any time. All changes will be effective immediately upon posting to the Site. Material changes will be conspicuously posted on the Site or otherwise communicated to you.

1. Personal Information We Collect

We may collect a range of Personal Information. “Personal Information” means information that uniquely identifies, relates to, describes, or is reasonably capable of being associated with or linked to you.

The types of Personal Information we collect may include:

• Contact Information – When you join the PKD Outreach Foundation Community or request additional information from us, we may collect your contact information. This may include your name, email address, phone number, and demographic information.

• Financial Information – If you make any donations through our Site, we (and our third-party vendor) will collect your financial information, including your name and payment information.

• Location Data – While navigating our Site your mobile device or browser may share your location data, both through WiFi and GPS. We will collect this information based on the settings of your phone and browser.

• Usage Information – When you use our Site, our servers may automatically record information, including your Internet Protocol address (IP Address), browser type, referring URLs (e.g., the site you visited before coming to our Site), domain names associated with your internet service provider, information on your interaction with the Site, and other such information.

• Employment Information – If you apply for employment, we will collect your employment and work history, as well as other Personal Information related to your potential employment. This may include your education and employment history, address and contact information, demographic information, and any other information included in your resume or application.

• Communication Information – We may collect audio, electronic, or visual information, which includes screen sharing views, any data in any files uploaded, emailed or otherwise provided by customers, the contents of your communications with us, whether via e-mail, text messaging, social media, telephone or otherwise, and inferences we may make from other Personal Information we collect.

2. How We Collect Your Personal Information

• We May Collect Your Personal Information Directly From You – For example, if you join our PKD Outreach Foundation Community, make a donation through our Site, or request information from us regarding our Services.

• We May Also Collect Personal Information From Third Parties – For example, we may work with business partners, subcontractors, advertising networks, analytics providers, and search information providers, transplant centers, nutritionists, and reproductive specialist who may provide us with Personal Information about you.

• Through Online Tracking Technologies – We and our service providers may use cookies, device identifiers, and similar technologies such as pixels, web beacons, and local storage to collect usage and browser information about how you use the Site. We process the Personal Information collected through such technologies, which may include or be combined with Personal Information, to help operate certain features of the Site, to enhance your experience through personalization, and to help us better understand the features of the Site that you and other users are most interested in.

Most browsers provide you with the ability to block, delete, or disable cookies, and your mobile device may allow you to disable transmission of unique identifiers and location data. If you choose to reject cookies or block device identifiers, some features of the Site may not be available, or some functionality may be limited or unavailable. Please review the help pages of your browser or mobile device for assistance with changing your settings.

We do not respond to Do Not Track (“DNT”) signals sent to us by your browser at this time. To learn more about how DNT works, please visit http://allaboutdnt.com/.

• Through Analytics – We use analytics services, including Google Analytics, to assist us with analyzing our website traffic through cookies and similar technologies. To learn more about how Google uses data, visit Google’s Privacy Policy and Google’s page on “How Google uses data when you use our partners’ sites or apps.” You may download the Google Analytics Opt-out Browser Add-on for each web browser you use, but this does not prevent the use of other analytics tools. To learn more about Google Analytics cookies, visit Google Analytics Cookie Usage on Websites.

3. How We Use Personal Information

To the extent permitted by applicable law, we may use Personal Information to:

• operate the Site and provide support to our business functions;

• fulfill customer requests, such as to join our PKD Outreach Foundation Community, complete donation payments;

• protect against criminal activity, claims and other liabilities;

• send you information about our mission, Services, and events;

• respond to reviews, comments, or other feedback provided to us;

• support and personalize the Site and our advertising efforts;

• protect the security and integrity of the Site;

• provide customer support;

• the extent required for benchmarking, data analysis, audits, developing new Services, enhancing the Site, facilitating product, software and applications development, improving the Site or our Services, conducting research, analysis, studies or surveys, identifying usage trends, as well as for other analytics purposes;

• meet our contractual requirements;

• comply with applicable legal or regulatory requirements and our policies;

• respond to inquiries related to employment opportunities;

• market, advertise, and provide the Site and our Services; and

• the extent necessary for any other lawful purpose for which the Personal Information is collected.

4. Disclosure of Personal Information

We may share your Personal Information in the following circumstances:

• For Legal or Safety Reasons – When we have a good faith belief that access, use, preservation or disclosure of Personal Information is reasonably necessary to (a) satisfy or comply with any requirement of law, regulation, legal process, or enforceable governmental request, (b) enforce or investigate a potential violation of the Terms of Use, (c) detect, prevent, or otherwise respond to fraud, security or technical concerns, (d) support auditing and compliance functions, or (e) protect the rights, property, or safety of pkDO, its users, or the public against harm.

• In the Case of a Merger or Sale – If and when we are involved in a merger, acquisition, or any form of transfer or sale of some or all of its business, whether as a going concern or as part of bankruptcy, liquidation, or similar proceeding. Personal Information may be transferred along with the business. Where legally required we will give you prior notice and if you have a legal right to do so, an opportunity to object to this transfer.

• To Service providers – When we hire a service provider to help operate the Site or our business, we may give access to Personal Information as necessary to perform the services on our behalf. This may include service providers that operate our Site, send our communications, or run our promotions.

• To Business Partners – We may share Personal Information with our trusted business partners. For example, we may share your Personal Information with a company when we co-sponsor an event or service. These partners and affiliates may use your Personal Information to, among other things, send you information or contact you about their services and products.

5. How Long Do We Keep Your Personal Information

We will retain your Personal Information for as long as necessary to fulfill the purposes for which it has been collected, as outlined in this Privacy Notice, or any longer retention period required by law.

6. How We Protect Your Personal Information

We use our commercially reasonable efforts to protect the confidentiality and security of Personal Information we process. However, despite these efforts to store Personal Information in a secure operating environment, we cannot guarantee the security of Personal Information during its transmission or its storage on our systems. Further, while we attempt to ensure the integrity and security of Personal Information, we cannot guarantee that our security measures will prevent third parties such as hackers from illegally obtaining access to Personal Information.

7. Your Choices and Controls

Depending on where you live, you may have the right to exercise certain controls and choices regarding our collection, use, and disclosure of your Personal Information. If you believe you may the right to exercise certain controls and choices, please submit a request to privacy@pkDO.com. Please note that we may need to verify your identity before considering a request and that we may deny certain requests, or only fulfill some in part, as permitted or required by law.

To opt-out of marketing communications please email us at privacy@pkDO.com or by following the instructions included in the email or text message correspondence. Please note that, even if you unsubscribe from certain correspondence, we may still need to contact you with important transactional or administrative information, as permitted by law. Additionally, if you withdraw your consent or object to processing, or if you choose not to provide certain Personal Information, we may be unable to provide some or all of our services to you.

8. International Use of the Site

This Site is hosted in the United States. If you are visiting this Site from outside of the United States, please note that by providing your Personal Information it is being transferred to, stored, collected, or processed in the United States, where our data center and servers are located and operated.

9. Children’s Privacy

We do not target our Services to children under the age of 13. In the event that we learn that we have collected Personal Information from a child, we will promptly take steps to delete that Personal Information. If you are a parent or legal guardian and think your child has given us their Personal Information, you can email us at privacy@pkDO.com or contact us using the information listed in Section 13.

10. Links to Third-Party Websites

We are not responsible for the practices employed by any websites or services linked to or from the Site, including the information or content contained within them. We encourage you to investigate and ask questions before disclosing Personal Information to third parties, since any Personal Information disclosed will be subject to the applicable third party’s Privacy Notice.

11. Changes to this Privacy Notice

Please note that we may modify or update this Privacy Notice from time to time, so please review it periodically. We may provide you with an updated Privacy Notice if material changes are made. Unless otherwise indicated, any changes to this Privacy Notice will apply immediately upon posting to the Site.

12. Contact Us

If you have any questions about our practices or this Privacy Notice, please contact us at privacy@pkDO.com. You may also write to us at:

Polycystic Kidney Disease Outreach, Ltd

PO Box 982857

1764 Uinta Way

Park City, UT 84098