The possibility of a PKD-free world.
Oct 2, 2023
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In a conversation with James Myers, host of Kidney Stories, pkDO founder Richard Kellner shares how his family has been impacted by PKD and how the foundation is working to bring about a PKD-free world.
Interview starts at 5:50
James Myers provides information and background.
Introductions and discussion of PKDO.
Richard talks about how he donated a kidney to his wife Joanne in 2014, and how he “got fit” to be able to donate.
Richard and Jim talk about lifestyle intervention, including nutrition and medications, that his family follows to slow the progression of PKD.
Richard talks about how IVF and PGT-M can bring about a PKD-free world, as well as the costs involved and what to do if your healthcare doesn’t cover it.
Richard talks about his wife Joanne’s struggle with PKD and how he launched pkDO with a mission to end PKD, to honor her memory.
Jim and Rich talk about the importance of supporting live kidney donation, the immediate need to help loved ones who are waiting, how live kidney donations lead to a better outcome and how paired exchanges work.
Jim and Rich discuss ways to slow the progression of PKD, including Santa Barbara Nutrients product KetoCitra and finding top experts at the ADPKD Centers of Excellence
Jim and Rich talk about ending PKD in your family through PGT-M, how it works, and the tried and true medical procedures that have been around for 20 + years including IVF and PGT-M
Jim and Rich talk about the 100 PKD-free babies initiative and how pkDO will help fund the cost of PGT-M for families looking to do this.
Jim and Rich discuss future pkDO initiatives that aim to help couples who are looking to end PKD in the next generation of their families.
Jim and Rich talk about the importance of spreading the word to friends and family members, and how to be your own advocate with medical professionals.
Wrap up
If you have PKD and are looking to start a family without passing it to your children, pkDO may be able to help with funding for your PGT-M probe. Learn how
ENDING PKD IN THE NEXT GENERATION
pkDO will fund pre-implantation genetic testing (PGT-M) for 100 families, to enable a new generation of children to be born without PKD.
